Dyer Family Happenings

A.K.A. Mommy needs a place to write!

Rollercoaster week — October 25, 2014

Rollercoaster week

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These guys. I have to remember when it’s a rough hour, hours, day, days or week- they are why I do what I do. They are what my life is about. They are my everything and I thank God for putting them in my world.

1413681697113 We had a few rough days with our Leo, but overall it was a great week for him. We had his first monthly meeting with his whole ABA team. Directors, Supervisors, all of his tutors. They all agree that he is totally rocking everything they are throwing at him- with Art and Circle time being the exception. They brainstormed some new ideas of how to tackle those and try some new things. They brought up again wanting to have some cube chairs here for therapy. Those things are crazy expensive- and I can’t just buy one because the wrestling match of the world would end up taking place over said chair. They also mentioned a swing- they look kinda like a deflated bean bag chair. We are on a tight income and it’s hard to come up with $300 dollars for things, I can try but it’s rough. I don’t have to. They have grant money to help us with the tools we need for Leo. I AM FLOORED. I sat in the meeting with the director telling me this with my mouth open and looking and sounding like a total moron. Having this team of amazing people working with Leo to make everything about him stronger is a blessing, having it be totally funded through his insurance is a Huge blessing, having something like this happen is a miracle.

1411664832685And Max. Oh Mr. Max. It’s been a very rough week with Max. Gas pains, hitting, kicking, general tying to beat down anyone he comes into contact with. Oh wait, nope just me. This season with him will either make me the strongest woman or break me into a million pieces. Trying to hard to get words to come out of his mouth is a no go so far. I know he’s frustrated , I watched this same frustration when Leo had a hard time talking, Max is getting more and more aggressive the more he can’t communicate.

I’m hoping to at least calm his heart in the next few weeks, but until then it’s going to be rough.

Now- pumpkin chili time.

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words, sounds, sentences and frustration — October 6, 2014

words, sounds, sentences and frustration

Leo’s words are many. Not all come out properly, and although I speak Leo fluently the rest of the world definately does not. It does blow me away how perfectly some words come out of his mouth and others come out like he has hearing loss. He’s been tested before andafter tubes and we are told his hearing is spot on now (post tubes) but I can’t help but wonder why after having tubes in for a year all of his words aren’t better.

The time (I say time, not days or hours because most of the time his behaviors change so rapidly) that his words are many, and used in sentences are beautiful and productive and give me hope. Then there are the times he speaks in “Leo”, which I’m convinced is a cross of martian and Russian with a little Thai flair, and uses this jibber jabber and noises to communicate. These times kill me. It is a fight to find out what he needs, who he wants, if something is wrong. This weekend was more of “Leo” than it was english, and its been frustrating. Paired with the language of Leo has been hitting and throwing.

I can’t break through it, I couldn’t get him to use his “I want” statements, I couldn’t get him to look at me. His stimming with sounds was off the charts. And as patient as I am with him and the situation I get mad, but not at him. I get so mad that between Joel and I we have enough words for 17 people and none of those have gone to our son. I get mad that I can watch his frustration when he can’t put his wants or emotions into words and I can’t help him. So I hold him. So I hug him. So we read a book or watch a movie or go for a walk.

And now I’m starting to worry about Max and his lack of words. At 18 months he has about 7 words and a lot of sounds. None of those words, aside from “Momma” are very clear.  It freaks me out. The hairs on the back of my neck stand up. I’m glad I ordered a P.E.C. book.