Dyer Family Happenings

A.K.A. Mommy needs a place to write!

Delayed speech, big lil dude and the sweetest 3 1/2 year old on the planet. — October 18, 2014

Delayed speech, big lil dude and the sweetest 3 1/2 year old on the planet.

Max had his well visit, he’s a big boy. Our Peditrician said he’s on the path to being bigger than Leo and Leo is a DUDE. (My thoughts on purchasing a grocery store and a pants store to get us through the teenage years may need to come into reality..) Max measured in at 31lbs and 33″ tall. He is solid, and smiley and only has 2 words. It seemed like he had closer to 5 maybe a month ago, but “wassat” and “momma” are it for right now. So I racked my brain trying to remember where we were with Leo at a year and a half. (I know you can’t compare your kids, but he’s all I’ve got to go on)

Leo never had a problem with words. He had lots, never in sentences but lots of words- labeling words. And then one day or a month went by and there weren’t any new ones. And his Leo jibber jabber was in the forefront of his speech. Max hasn’t ever really had words. Our Peditrician referred him to speech therapy. And I’m worried. He is what he is, and he will be amazing and full of love regardless, but damnit. I don’t want him to struggle with words like Leo still does at times. I don’t want him to go through the frustration of not being able to tell us what he needs.

I started with the PEC book with him today. It’s going to become part of his and my one on one time while Leo is at “school” 3 days a  week. But, I’m worried. A lot.

Leo rocked his first day at the clinic. He has different tutors when he is there. He played with another little gal there, and I guess the ball pit was his favorite. I am really excited for some sensory integration into his therapy. Bouncing, ball pit, finger paint whatever. He licked a baby carrot and some ranch dressing this week- and last night ate a quesadilla with some apple in it.  Made me a super happy momma.

When we were leaving the clinic he stopped, looked up at me and said “momma, I have friends”. It’s a good thing I had my sunglasses on because I cried like a baby. I have been so worried he wouldn’t be able to make friends. It was always so hard for me as a kid to make friends and I don’t want that for him. I want him to run and smile and laugh and play. I want there to be kids at his birthday parties, and I want him to get invitations to different things with his peers. Being accepted. I want him to be accepted.

It’s been a week. I’m happy for a zoo trip tomorrow and some family time Sunday.

words, sounds, sentences and frustration — October 6, 2014

words, sounds, sentences and frustration

Leo’s words are many. Not all come out properly, and although I speak Leo fluently the rest of the world definately does not. It does blow me away how perfectly some words come out of his mouth and others come out like he has hearing loss. He’s been tested before andafter tubes and we are told his hearing is spot on now (post tubes) but I can’t help but wonder why after having tubes in for a year all of his words aren’t better.

The time (I say time, not days or hours because most of the time his behaviors change so rapidly) that his words are many, and used in sentences are beautiful and productive and give me hope. Then there are the times he speaks in “Leo”, which I’m convinced is a cross of martian and Russian with a little Thai flair, and uses this jibber jabber and noises to communicate. These times kill me. It is a fight to find out what he needs, who he wants, if something is wrong. This weekend was more of “Leo” than it was english, and its been frustrating. Paired with the language of Leo has been hitting and throwing.

I can’t break through it, I couldn’t get him to use his “I want” statements, I couldn’t get him to look at me. His stimming with sounds was off the charts. And as patient as I am with him and the situation I get mad, but not at him. I get so mad that between Joel and I we have enough words for 17 people and none of those have gone to our son. I get mad that I can watch his frustration when he can’t put his wants or emotions into words and I can’t help him. So I hold him. So I hug him. So we read a book or watch a movie or go for a walk.

And now I’m starting to worry about Max and his lack of words. At 18 months he has about 7 words and a lot of sounds. None of those words, aside from “Momma” are very clear.  It freaks me out. The hairs on the back of my neck stand up. I’m glad I ordered a P.E.C. book.