Dyer Family Happenings

A.K.A. Mommy needs a place to write!

I have OCD — December 12, 2014

I have OCD

It’s undiagnosed but its there. And it gets worse when I’m stressed out. BUT it is crazy helpful with certain things, like “monitoring” when Leo has a jump backward. (There is a pattern, I’m starting to recognize it)

After he was officially diagnosed with Autism I started watching. Looking for things that set of his sensory sensitivity, that overloaded him, when we took leaps backward after climbing higher and higher. We have worked very hard through a lot of his sensory issues. Sirens, coffee grinders, lawn mowers and weed whackers he can sit through most of the time. Wild Kratts and BBC dinosaur documentaries amp him up so much that I can’t calm him back down and have been “outlawed” in our house. SpongeBob squarepants (my husband put it on for him one day, that show gives me a headache) calmed him down. say what?

So after starting school, the first big set back we had was after Spring break. The child that thrives on schedule, that can’t function without it, that demands the first thing they do at school now is make a schedule, had to function on no schedule for a week. We went back to school and he went non verbal, started hitting, screaming all of the time and it wasn’t much better at home.

Then came summer break, he had mellowed out a bit and being back on schedule helped “regulate” the tantrums and outbursts, kept his words coming, and whammo. As much as I tried to make a schedule for us- it wasn’t his normal school schedule and we fell back again. School starts, we are okay.

So breaks are the hardest. And I try to explain to him that breaks are good. But he doesn’t understand. Thanksgiving we had 5 days straight off and it’s been a fight ever since. Pair that with music, lights, shiny and Christmas everywhere. So he’s licking his hands, chewing on his fingers, biting, screaming, not listening, hitting, throwing and generally off. And I don’t always handle it well. I try to stay calm, have him look at me and talk it out, but when it’s the 80th time saying we don’t jump on the couch or hit our brother or scream or throw, I end up yelling. And I know that sets it back even more.

It drives me nuts that something that is normal, that we do everyday some days is too much, or something he can’t handle, or that he just totally shuts down and I can’t get through to him. I can’t understand it. No matter how I try to place it in a pattern or watch for what leads up to it.

I know we are going to have ups and downs, sometimes the downs just kick you in the gut.

So prayers to get through this season in one piece would be greatly appreciated.

Break? Who gets a break? — December 10, 2014

Break? Who gets a break?

No one tells you when you first become a stay at home mom that the work you did, and were paid for, is NOTHING in comparison to the work you will be doing at home. That the work at home is never ending, lacking thanks, expected, demanded, 24 hours a day 365 days a year. There is no lunch break or vacation time. That trips to target alone become the most amazing part of your month and that when you leave for an hour and a half you will come home to a disaster and your mild relaxation you just achieved will be squashed the minute you walk in the door. That every morning, even if you try your hardest to have the house picked up the night before there will be dishes in the sink, there will be toys randomly stuck places and a mountain of laundry that you know you tackled all of just the day before. Your mind never turns off, sleep isn’t restful and holiday stress adds to it all. There is always something that needs to be done, someone that needs something or to be taken somewhere. A meal to be cook, cookies to be made, therapy to be ready for, school to get to on time and appointments to fight for. Always something.

2 1/2 weeks ago we headed off to the Pediatricians office for referrals for the boys- none of which have been handled yet. Last Friday I had to take Leo to the E.R. for tummy issues- they ran tests, all of which came back fine there are no infections, his blood counts and iron look fine. But something is wrong. And until we get a damn referral from the doctor the G.I. Specialist scheduler won’t even talk to me. So now he won’t poop, at least he won’t poop in the toilet. He will poop in his pants. GIANT potty training step backward. And frustrating and gross, but I get it, I’d be pretty potty shy after having strangers look at my butt too.

Max is trying to communicate, so very hard but it’s just not happening as fast as he’d like it to. So he throw fits. Epic meltdowns. With a scream that could break glass and gives me an instant migraine. But I don’t always know what he needs. Pair that with his not wanting to sleep unless his daddy is holding him. Yeah so daddy works, and Max needs a nap during the day, but refuses to take them because daddy isn’t here to hold him. I’m not good enough to rock him to sleep so the screaming starts and almost doesn’t end. And it gives me a migraine almost instantly.

I’ve said it before and I totally mean it, I get so mad when I’m talking and my words aren’t understood so I get where both of the boys get their anger with lack of communication, but damnit. I read to them, I sing to them, we talk, we walk and talk. But it’s not working, and I don’t know how to fix it. Got a call from Max’s advocate at the regional center (the place that is suppose to get us started on speech therapy and motor skill issues for him) yesterday. The gal was very nice, but she was the 4th person I’ve told that Leo is also a client of theirs and she is the 4th person that has told me that they like to keep siblings with the same advocate and someone would call me back. Sigh. Broken communication from the place that is suppose to be teaching my children to communicate. Maybe that’s part of the problem.

I have overloaded myself with projects, as per usual and all I really want to do is cross stitch and drink coffee. Cross stitching relaxes me. I love the repetitive motion. I love how pretty the thread looks against the background, and how at first it looks like an abstract piece of art but by the end is something so beautiful. But I can’t. I have that mountain of laundry to tackle, presents to finish and wrap, cookies to bake, dinner to fix, appointments to take people to, therapy to prepare for, and a house to clean.

But there will be a day where I can. And when I can I’ll thank God for the break that I am so desperately in search of now.

We made it through Halloween! — November 1, 2014

We made it through Halloween!

I know, I know- it’s fun, it’s full of smiles and spookies and friends and treats. Well it was this year! (so happy about that). The past couple of years have been struggling to keep costumes on, wanting to go into peoples houses and me running after Leo while trying to make his way through  (thank goodness it was just two of our neighbors that adore him). But this year it was different, this year he is 3 and excited and talking and understanding when I tell him that we aren’t going to walk into peoples houses- even though he did ask before ringing doorbells.

We made it to 4 houses on our block this year- past years have been 2. He helped me hand candy out to all of the kids that came to our door with an excited “HAPPY HALLOWEEN- TRICK-OR-TREAT-HI FRIENDS” every time. And then, he met “Spiderman” and was totally mesmerized. He grabbed candy from our bucket, looked up and there he was- in all of his about 10 year old Spiderman glory. Leo’s eyes got big, he stopped dead in his tracks and with an adoring voice said “Hi Spiderman, wow”. As  Spiderman was walking away he proclaimed “Momma- look its Spiderman, Spiderman Momma!” It cracked me up, as well as Spidermans mom.

He got to be around kids and teachers in costumes at morning ABA, and did great. This has totally jazzed me to what this holiday season is going to be for him. Exploring, learning, wanting to see new things and be part of things that he was totally unsure of last year. We started talking about Thanksgiving, and I am hoping it will be a jump off point to tasting new foods. I think we are going to make some fun crafts for our house and Oma and Papas and Great Grammas.

Max, just wants to be like brother. He’s picked up a few new words. He doesn’t seem to use them many times over but a few are coming none the less. So I’m excited for this Holiday season. And that I totally made Leos costume. (He told me 3 days before Halloween his didn’t want to be a hot dog, he wanted to be a Bat. Not Batman, a bat “with the spooky hands and the fly momma, the fly”

So a Bat he was.

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