Every household, every set of kids and parents’ world with Autism looks totally different from the next. Some have school and some therapy. Some baseball teams some video games. Some are filled with words some are quiet. Our world is so full, and I’d love to share some of what it’s filled with. 🙂
Our world with Autism is filled with preschool and church and dancing and music. It’s filled with McDonalds and pizza and pancakes and bananas. It’s filled with bubble baths and movies and stuffed animals and snuggles. And jammies and favorite books and laughs and hugs. It’s filled with words, some that make sense and some that don’t and some that take a very long time to master. It’s filled with transitions from thing to thing and place to place that are sometimes really hard and with repetitive questions about our schedule for a greater part of the day.
It is filled with noise and light and smells and sounds and sometimes these things are really hard to push past. It’s full of toe walking and jumping and flapping and spinning circles when we are excited. It’s full of swimming and dirt digging and car playing and kung fu. It’s full of emotions that come very heavy in waves and sometimes not at all. It’s full of drawing and coloring and learning to read and write and frustrations because these things are super hard.
It’s full of excitement for things like birthdays and fireworks and morning prayers and car sing alongs. It’s full of adventures to the zoo and the discovery center to the park and around the corner to Walmart for doughnuts. It’s full of abcmouse.com and Anamalia books and spiderman and legos. It’s full of smiles and frowns and yells of joy and tears of pain and frustration.
But more than anything else listed, our world is FULL OF LOVE. Between one another, we show it to our neighbors, the homeless, our extended family and our teachers and each other. Our friends and animals and the grocery store clerks and waitresses we encounter every week. The love is what makes the good great and the rough patches easier to pull through.
Living in a household driven by speech delays and sensory issues and stimming and constantly having to repeat conversations is draining, both mentally and physically. I’d take away every stutter, flap, nipple pinch, loud noise and bright light that Leo can’t handle in a heartbeat. I’d take away every struggle Max has with his words, his head hitting, his spinning and his toe walking so fast. But it is who they are. And it’s okay. And it’s okay because we love. Our family is just like everyone elses, with kiddos learning their footing in this big old world and teaching their mom and dad how to open their hearts and minds even bigger to accept them as they are.
I’d love to hear what your world with Autism is like. 🙂
lets light it up blue!