California is finally getting the memo that it is in fact autumn. It’s still a smidge confused but the brisk mornings are a nice way to start days. But weather and month changes aren’t the only things that are changing around here. Surprise surprise. (One day all I’ll write is- everyone is alive and nothing has changed and that might come in about 35 years….)
Leo is still majorly rocking preschool. His questions, conversations and general talking is loud and never ending but I love it. Even when it’s 5am and I don’t feel well. He tells us when he’s excited and happy and angry and sad, but never when he’s tired. 🙂 admitting that at 4 would for sure be the end of the world. Wednesday we have his first Parent Teacher conference. I can’t wait to hear all about how he’s doing. With all of the advances he’s making, regulating (stimming) has become more pronounced. You can tell it’s totally involuntary movements and it’s amazing how it helps him get his words out when he’s excited or calm him when he’s upset. I’m proud of him. He’s understanding his own body and that is HUGE.
Max is talking up a storm. His fits are more appropriate to being 2 or tired or a boy that just wants to throw pumpkins. His therapy is changing totally. We are actually backing out of ABA and he will be having more focused therapy to work more on speech and O.T. for some super testy sensory issues. I get one on one time with him to talk and read and sing and play with playdough. I love it. I’m proud of how he wants to be a big boy. He wants to go to school with Leo. Wednesdays are library day and he just loves it. It’s slowly coming together for our boys.
Last Wednesday was a hard day. Max spiked a fever and had a seizure. It was definitely the scariest thing I’ve ever seen. He was purple from not breathing, he was unconscious for way too long and when he finally came too, he wasn’t Max. It was like the sparkle in his eyes was gone. It freaked me out. I just wanted, no I needed him to say “momma”. If he said that somehow I thought it would all be okay. He slept most of Wednesday after we got home from the hospital. And Thursday morning it was like watching a miracle unfold.
He woke up, happy camper style, walked into the living room and started talking. 2-3 word sentences. Words he’d never said before. Rewind to Wednesday night when my husband asked me very honestly “when enough is enough for our boys”. They have had so many hurdles already and we just need them to be able to be. I feel like God hear him. This was his way of saying, lemme show you that things are going to be okay.
We had already made the decision to pull him from ABA, but his communication becoming so much better since Thursday made it easier for me to confidently remove him from ABA services this morning. Because I felt God saying, you’ve got this because I’ve got you. And I am so thankful. I am thankful for what ABA did to help our boys, I am thankful for my husbands teamwork with raising our children, I am thankful for the tutors that are more like family and I am thankful that when it feels like we can’t handle another thing that God tells me, I got this. Because you put your faith in me.
I know there are lots of people that don’t believe or are skeptics about faith, but I’ve gotta tell you in my shoes it’s a real deal.
Now I’m looking forward to the next season and what it will bring to my family.